Wednesday, April 20, 2016

What Narcolepsy Really Looks Like. Spoiler Alert- It Sucks.

This is a YouTube clip from Sleepy Sara Elizabeth.  This is the note under the video Sara wrote about it:

Published on Jul 7, 2014
I have narcolepsy with cataplexy, and it can be very frustrating to try to explain what it's like to people who have never seen narcolepsy in real life, and how much of a struggle it can be. Most people think that it's funny until they see what actually happens, or they are completely unprepared and get really scared and panic.I filmed this by accident, and it was really weird to go back and watch later from an outside perspective. I am posting this video as a way to help educate people, so please no trolling. Just like people with epilepsy, I can't control having a sleep attack or cataplexy any more than they can control having a seizure. Thank you for your understanding.

In watching the video I was quite moved and empathetic to her condition. The difficulties she faces that many of us simply can't comprehend are quite strong.  I really admire her strength and bravery in posting the video.

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